NINDS Headache Common Data Elements (CDEs) Announcement

NINDS Updated Headache CDEs- Now Available

The National Institute of Neurological Disorders and Stroke (NINDS) Headache Common Data Elements (CDE) were developed to increase the efficiency and effectiveness of clinical research studies and clinical treatment, increase data quality, facilitate data sharing across studies, more effectively aggregate information into significant metadata results, significantly reduce study start-up time, and help educate new clinical investigators. Since the 2011 release of Version 1.0 of the Headache CDEs, the research community felt that updates were necessary to better serve the purpose of harmonizing data collection.

The updated Headache Version 2.0 CDE recommendations are now available on the NINDS Headache CDE website: https://www.commondataelements.ninds.nih.gov/Headache.aspx#tab=Data_Standards. Comments and feedback for the Headache CDE recommendations will continue to be accepted.

Please direct any questions to Michael.Oshinsky@nih.gov (NINDS/NIH Program Director, Pain and Migraine) and NINDSCDE@emmes.com.